Support Groups
This page contains links to other Internet sites with information about support groups for parents affected by a birth defect. We hope you find these sites helpful, but please remember we do not control or endorse the information presented on these websites, nor do these sites endorse the information contained here.
4301 Connecticut Avenue NW, Suite 404
Washington, DC 20008-2369
Phone: 202-966-5557
Email: info@geneticalliance.org
National Down Syndrome Congress
30 Mansell Court, Suite 108
Roswell, GA 30076
Toll free: 800-232-6372 (NDSC)
Phone: 770-604-9500
Email: info@ndsccenter.org
National Down Syndrome Society
666 Broadway, 8th Floor
New York, NY 10012
Phone: 800-221-4602 or 212-460-9330
Email: info@ndss.org
National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury, CT 06810
Phone: 203-744-0100
Toll free: 800-999-6673
S.O.F.T. (Support Organization for Trisomy 18, 13, and Related Disorders)
2982 South Union Street
Rochester, NY 14624
Phone: 585-594-4621
Toll free: 800-716-7638 (SOFT)
P.O. Box 3696
Oak Brook, IL 60522
Phone: 630-990-0010
Toll free: 877-969-0010